Autor: Mancini, Alexandra; Price, Jayne; Kerr-Elliot, Tara 
Neonatal Palliative Care for Nurses
1st Edition 2021, 413 p., 201 color illus., 2 black/white illus., 10 color tab.

About the book: 

This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident.

This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important  strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter.

There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.

Neonatal Palliative Care for Nurses

-Offers the very first textbook for nursing neonatal palliative care edited by nurses for nurses with an international perspective

-Written by international and authoritative neonatal palliative care experts 

-Shares experiences of parental involvement throughout the book through case studies and parental quotes

-Brings neonatal care and palliative care specialties together from a nursing perspective 

Contents:

Neonatal Palliative Care for Nurses

Dedication

Foreward

Julia Downing

Preface

The Editors

Contributors’ list

Acknowledgements

NN Panel

Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care

Chapter 1. Introduction to Neonatal Palliative Care
Neil Marlow*, Katie Gallagher

Corresponding author’s e-mail: n.marlow@ucl.ac.uk

Chapter 2. Exploring the Concept on Neonatal Palliative Care
Brian Carter, Amy Kuelbebeck*

Chapter 3. Support for Staff: Building Resilience in Nurses
Rachel Black*, Arlene Honeyman

Corresponding author’s e-mail: Rachelblack@orpheus.org.uk

Chapter 4. The Importance of Effective Communication on the Neonatal Unit
Paula Abramson*, Alexandra Mancini
Corresponding author’s e-mail: paula.abramson@childbereavementuk.org

Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family
Revd Dorothy Moore-Brooks*, Tara Kerr-Elliott
Corresponding author’s e-mail: dorothy.moorebrooks@gosh.nhs.uk

Chapter 6. Ethical Concepts in Neonatal Palliative Care
Vicki Xafis*, Karen Brombley
Corresponding author’s e-mail: Vicki.Xafis@health.nsw.gov.au

Chapter 7. Legal Issues in Neonatal Palliative Care
Rebecca Fitzpatrick*, Ben Troke
Corresponding author’s e-mail: Rebecca.Fitzpatrick@brownejacobson.com

Chapter 8. The Principles of Genetics within Neonatal Palliative Care
Aoife Bradley
Corresponding author’s e-mail: aoife.bradley@belfasttrust.hscni.net

Chapter 9. Antenatal
Sam Collinge*, Elizabeth Bailey
Corresponding author’s e-mail: Sam.Collinge@uhcw.nhs.uk

Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background
Claire Campbell
Corresponding author’s e-mail: Claire.campbell@nuth.nhs.uk

Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project
Nicholas Embleton*, Sarah Stephenson
Corresponding author’s e-mail: Nicholas.embleton@newcastle.ac.uk

Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse
Katie Gallagher*, Lisa Leppard
Corresponding author’s e-mail: katie.gallagher@ucl.ac.uk

Chapter 13. Advance Care Planning
Jonathan Downie*, Tara Kerr-Elliott, Finella Craig
Corresponding author’s e-mail: jonathan.downie@nhs.net

Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care
Angie Scales
Corresponding author’s e-mail: angie.scales@nhsbt.nhs.uk

Chapter 15. Continuing Emotional and Practical Support for the Whole Family
Anne Harris
Corresponding author’s e-mail: anne.harris@rainbowtrust.org.uk

Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care
Linda Maynard
Corresponding author’s e-mail: linda.maynard@each.org.uk (found via Google, to be confirmed)

Chapter 17. Collaboration between Neonatal Units and Children’s Hospices – Exploring Opportunities for Potentially Improving Care and Offering Choices
Jayne Price*, Rosa Menizabal-Espinosa, Jacqui Morgan, Anna Spicer, Katrina Williams
orresponding author’s e-mail: j.e.price@sgul.kingston.ac.uk

Chapter 18. Interdisciplinary Working in Neonatal Palliative Care
Patricia McNeill*, Jacqueline Johnstone, Frances Gilmore
Corresponding author’s e-mail: p.mcneilly@qub.ac.uk

Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice
Sharon Nurse*, Julie Ling, Valerie Peacock
Corresponding author’s e-mail: s.nurse@qub.ac.uk (found via Google, to be confirmed)

Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination
Rachel Black*,Tara Kerr-Elliott, Lydia Judge- Kronis, Neil Sebire
Corresponding author’s e-mail: docrachelblack@gmail.com

Part II. Achieving Quality in Neonatal Palliative Care Internationally
Chapter 21. Introduction
Joan Marston
Corresponding author’s e-mail: joan.icpcn@gmail.com

Chapter 22. Australia
Victoria J. Kain
Corresponding author’s e-mail: v.kain@uq.edu.au

Chapter 23. Kuwait
Tracie Dempster
Corresponding author’s e-mail: tracie.dempster@bacch.org

Chapter 24. India
Mary Ann Muckaden
Corresponding author’s e-mail: muckadenma@tmc.gov.in

Chapter 25. Malaysia
Lee Ai CHONG*, Azanna AHMAD KAMAR, Hasimah MOHD YATIM, Halimatun Saadiah HASHIM
orresponding author’s e-mail: leeailah@yahoo.com

Chapter 26. South Africa
Julia Ambler
Corresponding author’s e-mail: julia@umduduzi.co.za

Chapter 27. Ireland
Claire Quinn*, Marie Lynch
Corresponding author’s e-mail: claire.quinn@nuigalway.ie

Chapter 28. The Netherlands
K.A. Bergman, A.T. Wedzinga-de Vries, A.A.E. Verhagen*
Corresponding author’s e-mail: a.a.e.verhagen@UMCG.nl

Chapter 29. Germany
Ulrike Lindwedel-Reime, Sabine Kraft*
Corresponding author’s e-mail: kraft@bundesverband-kinderhospiz.de

Chapter 30. Singapore
Majella Irudayam*, Lim Sok Bee, Rahimah Bte Bujal, Ann Toh
Corresponding author’s e-mail: majella.irudayam@kkh.com.sg

Chapter 31. Ukraine
Andrey Penkov
Corresponding author’s e-mail: andrey_penkov@mail.ru

Chapter 32. Argentina
Rut Kiman
Corresponding author’s e-mail: rkiman@gmail.com

Chapter 33. Italy
F. Benini* , F. Rusalen, M.E. Cavicchiolo, S. Salvadori, P. Lago
orresponding author’s e-mail: franca.benini@sanita.padova.it

Chapter 34. Scotland
Evelyn Rodger
Corresponding author’s e-mail: EvelynRodger@chas.org.uk

Chapter 35. France
Dr Pierre Bétrémieux
Corresponding author’s e-mail: pierre.betremieux35@gmail.com

Support Organisations

Index